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Kisses from Kinsley

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Brain tumour tot Kinsley inspires 12-hour Forfar Loch cycle event past £5,000 mark

A marathon cycle inspired by courageous Angus brain tumour tot Kinsley McMillan has smashed through the £5,000 fundraising barrier. Paul Duncan took on the 12-hour Forfar Loch event on Saturday to raise funds for Tayside Children with Cancer and Leukaemia. He set up the event as a show of support for the battle being fought by cousin Eden Kennedy’s one-year-old daughter, Kinsley. Kinsley was diagnosed with an optic nerve glioma at just several months old and has already had crucial craniotomy surgeries and gruelling chemotherapy. She is currently doing well and was able to go along to the loch with her parents and older brother, Freddie, for the sunshine event. Paul said: “A huge thank you to everyone who came out to support us, that meant so much. “To everyone who did laps, you won’t believe how much that meant to me,” he said. He paid a special tribute to friends Craig Beaton and Derek Craig for their support on the many laps of the loch. ”The best bit though was getting a cuddle from wee Kinsley at the end,” said Paul. The fundraiser is sitting at more than £5,300 and remains open here for further donations. Tumour growing Kinsley’s gran, Karen Kennedy said the family was overwhelmed by the support for the TCCL fundraiser. Karen added: “We had a meeting with Kinsley’s neurosurgeons during the week and at the moment she is clinically well. “Unfortunately, her tumour is growing and the chemotherapy is not working to resolve this. “Kinsley has a rare brain tumour that is very stubborn and she continues to brave this battle. “Her neurosurgical team has spent a long time studying the MRIs to find a plan to take forward. She continued: “Her last operation left her on life support and in a coma, but we know she will require another in the near future. “For now, it is a ‘wait and see’ approach.” Sensory garden There is a slim chance the cystic parts of the tumour may reduce, but Eden is preparing herself for the likelihood of her daughter facing another craniotomy. Karen said: “We are all so proud of Eden and the neurosurgery team share that pride in how she has coped and the extremely difficult decisions she has had to make as a young mum. “They have confidence in her to recognise if the cysts become troublesome, forcing the need for an emergency operation but we are hoping that will not happen. “We remain relentlessly positive and are so grateful to everyone for their continued support and prayers for Kinsley.” The tot recently received a donation from the Clowns in the Sky charity towards a sensory garden the family is planning to create for her. And they hope to gain extra support for a Pride of Britain award nomination in the brave wee girl’s name. “Kinsley gets limited help as she is under three and brain tumour is bottom of pile for cancer research so we’ve asked friends and family to nominate her – it would be great if she could get the recognition,” said Karen.

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An Angus tot is inspiring family and medics as she recovers from three open brain surgeries in as many months in her battle against a life-threatening tumour. Mum Eden Kennedy from Forfar is maintaining a vigil at the bedside of baby, Kinsley, in Edinburgh’s Sick Kids hospital, just days after the her latest major operation. Kinsley was diagnosed with an optic nerve glioma last September and has already had crucial craniotomy surgeries and gruelling chemotherapy at the age of nine and a half months. The infant has amazed those around her with her determination and brightness in the face of such serious difficulties. Her family say they have been overwhelmed by support from hospital staff in Dundee and Edinburgh. They also hope the wee one might be considered for a pioneering clinical trial drug. Kinsley’s 15-year-old cousin has made an emotional plea to medical experts after losing her own mum to cancer. Signs of illness emerged at five months Eden’s mum, Karen, said the signs that something was wrong emerged when Kinsley was just five months old. “She started getting shaking eyes and an MRI showed it was a brain tumour which was already quite well developed at that stage,” she said. A biopsy in October was followed by further surgery to insert a shunt in early November. Further investigation revealed the tumour had grown to 7cm by 5cm, prompting the latest emergency operation. “There have been complications, but she is so strong and such a fighter,” said Karen. “She has lost her sight because of the tumour and will never get it back, but we think there is a wee bit of a miracle because she seems to now be responding to light a bit.” The pandemic situation has meant Eden and Kinsley’s dad, John McMillan, cannot be together at Kinsley’s bedside, but they have ensured she has never been alone in Edinburgh or Ninewells throughout the past months. Eden, who was studying psychology at Perth College UHI  before Kinsley took ill, is currrently staying at Ronald McDonald House in Edinburgh while Karen, 46, looks after Kinsley’s older brother, 20-month-old Freddie. Karen added: “The staff in both hospitals have been amazing and the speed with which they work to help Kinsley has been outstanding.” Family’s clinical trial hope In the bid to have the youngster considered for a clinical trial being run from Germany, Kinsley’s 15-year-old cousin, Erin has penned an emotional plea after she lost her own mother to cancer. Erin, who was just ten when her mum, Lindsey, died, wrote: “I have been with Kinsley every step of the way. “I’ve sat and held her hand when she’s in pain, watched her with nurses where they have boxes full of medicine, held her until her eyes closed for the night and sang with her until she couldn’t laugh no more. “Now there is one critical thing I would like to do with Kinsley and that is make her wish come true. “I am hoping you could help me do this,” Erin wrote to clinical trial bosses. Previous Next