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Kisses from Kinsley

But I must explain to you how all this mistaken idea of denouncing pleasure and praising pain was born and will give you a complete account of the system and expound the actual teachings of the great explore

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About

About

KINSLEY MARY SADIE MCMILLAN

Dear Kinsley, My dearest Kinsley if love could have cured you then you would have lived and breathed for eternity. The day i lost you was the day i lost myself. I’ve been trying so hard to find myself again but it's the hardest challenge set yet because you were my world. It is not a path of choice, but it is a path I must navigate and walk with intention. It is definitely not linear with a pot of gold at the end. It is a storm of heart wrenching pain. ⚘️ It is a journey through the darkest and deepest parts of my soul and unbeknown to me time is not easing this heartache. Time is allowing the darkness to permeate through my body into the places that scare me, the empty bits of my soul and it’s a tsunami of sadness. However, I try to remember when this happens that it is an angel touching my soul to take over my heart to remember you. To honor you I get up every day, take a breath and start another day without you in it. Sometimes I laugh and love talking about you with those whose hearts and minds you touched in this world. I listen to music you liked and sing loudly with the windows rolled down! I am receiving your messages! We love the visits from the magpies you send us. We didn't realize Maggie was a magpie until after you died! To honor you I say the truth, I take chances, I'm more courageous your love is still my guide. You were the love of my life; you are my light and magic from the highest source. Now I live for us both so all i do i do it to honor you. I try to be like you, living with dignity, pride and grace. To honor you we visit you at the cemetery. We feel you all around us and we want to embrace that. We fill your spot with colors to honor your ability to see now. To honor you we have been selling sweets to raise money for children suffering from this dreadful illness. GRIEF is very powerful, more powerful than any international army across the globe. Every part of my body aches, every cell is tainted and feels permanently unable to regenerate. Every part of me longs to be with you. Every day is like climbing a mountain, battling the most powerful emotions that ripple through my soul. This is magnified on days or nights when grief is loud. I become more impatient, distracted, frustrated, and unfocused. In these moments I try to remember the reason I have a part of me missing is because part of my heart went with you. I was so blessed with you sharing this love so beautifully it occupied an entire part of my soul. My pain will never be healed until you are in my arms again i ache for the day I am with your beautiful soul again. Every time I think of you my heart still fills with pride. You are the most courageous and tiny human I have ever heard of. You are my hero I don’t smile as often as my old self. Smiling hurts now. Most of everything hurts some days, even breathing hurts. My heart still bleeds. You brought so much joy, laughter and happiness to my life that nothing seems the same anymore. I smile as I think about the keyring, I have with your photo on it which says "sass in spades' '. Even on days when grief is quiescent, when it isn't standing loudly in the foreground, even on days when I am even able to smile again, the pain is just beneath the surface. It's still there. I can feel happy and sad at the same time. I will be sad for the rest of my life without you here in this world. People make me happy, I'm happy with Freddie, Mummy, Uncle Adam and Phil. There are days when I feel paralyzed. My chest feels the sinking weight of your absence and, sometimes, I feel as if I will explode from the grief. If people knew how much I missed you they would wonder why I'm still breathing. I wonder this myself. I often look up to Heaven and blow kisses, love and hugs to you, we miss your touch, your angelic voice we miss everything about you. Losing you has affected me in so many ways: as a woman, a mother, a human being. It affects every aspect of me: spiritually, physically, mentally, and emotionally. There are days I don’t recognize myself in the mirror anymore. My understanding of life has changed and a hybrid life has been formed, a different meaning of life is evolving What I knew to be true or absolute or real or fair about the world has been challenged and completely crushed. I'm finding my way, moment-to-moment in this new life. Things that once seemed important to me are barely thought of any longer. Things aren't important in this world and I notice life's suffering more- hungry children, the homeless and the destitute. I went to the park just the other day and I saw Freddie looking at children with siblings. I just thought of you. He picked up toys a little girl dropped like he did for you. There are so many things about the world I now struggle to understand: Why do children die? There are some questions, I've learned, which are simply unanswerable. Why did we saw you on Earth and why couldn't you see us? Why are these roles reversed and why now you can see us but we can't see you. Without you I am incomplete the only piece of me that still feels alive is the space in my heart that's where you live and your memories live. Grieving mothers-, grandmothers and brothers’ wont’ wake up one day with everything ’okay’ and life back to normal. We all have a new normal now. As time passes, I may gain gifts, treasures, and insights. I may even become a better person with a higher level of compassion and understanding but trying to be positive isn't always possible because anything gained was too high a cost compared to losing you. Perhaps, one day, when I am 91 the age my Gran died and I'm very, very old, I will say that time has truly helped to heal my broken heart. But I'm not so sure....... You were my sunshine my only sunshine

Eden and Freddie

Kinsley’s adoring mum and brother whom were devoted to Kinsley and her complexities. Have committed to supporting Kisses from Kinsley. Not a day goes by where Kinsley isn’t thought about by them both

This organisation is fundamentally supported by Eden and Freddie. Please keep this family in your thoughts when considering supporting brain tumor research.

Eden and Freddie

Kinsley’s adoring mum and brother whom were devoted to Kinsley and her complexities. Have committed to supporting Kisses from Kinsley. Not a day goes by where Kinsley isn’t thought about by them both

This charity is fundamentally supported by Eden and Freddie. Please keep this family in your thoughts when considering supporting brain tumor research.

LISTEN ACT LEARN REPEAT

Get information about brain tumour symptoms and how they are diagnosed by healthcare professionals.

More than 11,700 people are diagnosed with a primary brain tumour each year. With over 130 different types of brain tumour already known to us, and with different areas of the brain controlling different functions, the symptoms associated with this disease can vary significantly from person to person in terms of the short and long term symptoms they cause.

Brain tumor awareness month is every March.   Please keep abreast our planned fundraising both on here and on our social media platforms.

Kinsley received the same treatment for her brain tumour as Karen Armstrong – daughter of astronaut Neil Armstrong who died in 1962. Treatments are the same 60 years later. Kisses from Kinsley is dedicated to raising awareness and fundraising for families diagnosed with brain cancer by supporting the research and developments of treatments.

“BRAIN TUMOURS RECEIVE JUST 1% OF THE NATIONAL SPEND ON CANCER RESEARCH”
Across the globe every child diagnosed with brain cancer knows there can be a cure and that they can have treatment that is not barbaric and brutal.

Whether you’ve been diagnosed with a brain tumour or a family member or friend has, we are here to help

Our Trustees

We Change Your Life & World

A trustee's role in a organisation is to be the 'guardians of purpose', making sure that all decisions put the needs of the beneficiaries first. They safeguard the organisation's assets – both physical assets, including property, and intangible ones, such as its reputation.

Karen Kennedy

Karen is a devoted and adoring Granny to Kinsley and her brother Freddie. She is the founder of the Organisation.
Karen has been committed to fundraising for childhood cancer from Kinsleys diagnosis for TCCL and Team Jak whom have supported the family. No one in connection with kisses from Kinsley receives payment or benefits of any kind.
Premises and overhead costs are met entirely by existing sponsors. The resultant being that almost every penny donated goes towards where it is most needed - the funding of vital Brain cancer research!

Linda Mackie

is Kinsley's confidante and hairdresser 💇‍♀️ Kinsley loved having her hair blow dried and told me she now has ringlets that she loves. Linda also feels the presence and messages for Kinsley who always helps her Granny find a hair appointment 💇‍♀️ Linda has left shrubs and flowers 💐 for Kinsley at her grave 💐 Linda is committed heavily to supporting children with this disease.

Philip Smith

Step Grandfather to Kinsley and and felt her magic was with her at her last meal and feels all the messages Kinsley's send. I think she tries to listen to the swearing 😊At the moment Kinsley is sending robins to make her presence known! Phil fed her the chocolate cake she had the night she died. He is booked on for a tattoo of Kinsley's handprint to watch over him. Phil and Mick built a bespoke table for Kinsley's needs in the colour pink which will stay with us forever. Has scattered Kinsley's grave with tigers 🐅 to have tea with her !

Moira Kelman

Kinsleys's Step Gran 👵 she adored Kinsley and has been with her throughout our cancer journey; often in the background but has given constant support to us. Moira, like all our Trustees isn't taking any payment for her role in supporting children with brain cancer

Lindsey Hamilton

As an ambassador it was an honour and a privilige to be allowed to write about Kinsley's short life while she was still alive. She was an incredible soul to know. It's an even greater honour to be asked to continue to be involved in her greatest legacy - the incredible Organisation set up in her name. This will fight for other children diagnosed with frightening and life threatening brain tumours. Along with many others I hope to be able to do her incredible spirit - and that of her family- justice, even in some small way.

Meet Councillor Craig Fotheringham

now the local ambassador for our Organisation Kisses from Kinsley Childhood Brain Tumour Trust.